Dialysis Patient Citizens (DPC) Education Center mourns the sudden passing of Board Member Robert “Bob” Lee, 54. Lee was a dedicated activist from Oregon who played a critical role in educating policy makers about the importance of protecting patient choice and access to care. Specifically, his continuous outreach to Senator Wyden helped secure passage of legislation to open Medicare Advantage to dialysis patients. Lee traveled to Washington, DC multiple times to meet with Members of Congress. He also travelled to Salem to testify at hearings before the state insurance commissioner. His involvement with DPC started when he became a Patient Ambassador [...]
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By Kathi Niccum, EdD, Education Director of DPC Education Center Let’s celebrate our caregivers this month! Hopefully, we will tell them often how much they mean to us and how much we appreciate their help, yet November is a time to make it “extra special.” For some, their caregiver is a spouse, a daughter or son, a sibling, or a special friend. Our informal caregivers (unpaid folks who assist with activities of daily living and/or medical tasks) help with so many tasks including transportation, medication reminders, doctor visits, coordination of health care, advocacy, and they provide personal emotional support. Caregivers make [...]
We are proud to announce that the DPC Education Center has recently partnered with the Making Dialysis Safer for Patients Coalition to help reduce the risk of bloodstream infections among hemodialysis patients. The Coalition is a collaboration of dialysis organizations who share the common goal of promoting the use of CDC recommendations and tools to improve patient safety nationwide. Dialysis Patient Citizens has been involved with the Bloodstream Infection (BSI) Collaborative since its creation and was the first patient group to participate, attending the inaugural meeting in 2011. The Making Dialysis Safer For Patient Coalition was created out of this initial effort and is working to spread [...]
By, Jackson Williams, Government Affairs Director for Dialysis Patient Citizens For more than a decade, officials in Washington, DC have been experimenting with ways to reorganize Medicare to deliver better care at lower costs. Several of these “demonstration projects” have involved ESRD patients. Now, the largest such program for dialysis patients has kicked off at 13 locations across the U.S. It’s called the ESRD Seamless Care Organization, or “ESCO,” model. This article describes what one of these projects, Philadelphia-Camden Integrated Kidney Care, is doing to improve care for its patients. Philadelphia-Camden Integrated Kidney Care covers about 2,000 patients at DaVita clinics in the [...]
The DPC Education Center will hold an educational conference call on bone and mineral metabolism (BMM) disease on Tuesday, June 16 at 3pm Eastern Standard Time (EST). Chronic kidney disease patients sometimes experience BMM problems, and many dialysis patients also have some form of BMM disorder. If BMM disease is left untreated, you may suffer severe bone pain, joint pain and fractures. In addition, lack of control over minerals in your vascular system increases the risk of heart disease. Dr. Mehul Raval will provide tips on what you can do to help control your phosphorus, calcium and parathyroid hormone levels to [...]